Recognizing the Need for Outside Help in Caregiving

Do you have a family member who is caring for a loved one? These caregivers often don’t recognize when they are in over their heads, and often get to a breaking point. After a prolonged period of time, caregiving can become too difficult to endure any longer. In the short-term, the caregiver can usually handle it. But in the long-term, help is needed.

A typical pattern with an overloaded caregiver may unfold as follows:

1 to 18 months. The caregiver is confident, has everything under control and is coping well. Other friends and family are lending support.

20 to 36 months. The caregiver may be taking medication to sleep and control mood swings. Outside help dwindles away and except for trips to the store or doctor, the caregiver has severed most social contacts. The caregiver feels alone and helpless.

38 to 50 months. Besides needing tranquilizers or antidepressants, the caregiver’s physical health is beginning to deteriorate. Lack of focus and sheer fatigue cloud judgment and the caregiver is often unable to make rational decisions or ask for help.

It is often at this end stage that family or friends finally intercede and find other solutions for care. This may include respite care, hiring home health aides or putting the disabled loved one in a facility. Without intervention sooner, the caregiver may become a candidate for long-term care as well.

Have you and your spouse made a promise to each other that you would never put the other in a nursing home? You may want to reconsider such a pact. Caregiving spouses will often sacrifice themselves to care for a disabled partner. The caregiving spouse may not ever place the disabled partner in a nursing home because of the guilt that would arise from breaking such a promise. I have seen more than one instance when a caregiver spouse’s health deteriorates to the point that he or she dies before the disabled partner.

At that time, the family usually has no choice other than to place the surviving disabled spouse in a nursing home. Oftentimes the care at the nursing home is better than that previously provided by the deteriorated spouse. It is best to have a plan in place before this occurs.

Especially with the holiday season upon us, caregivers feel even more stress — with planning, shopping and participating in holiday activities. This is a perfect time for family and friends to step up and provide some respite time and caregiving help.  Whether it is provided personally or arranged as a gift of services to be provided by a professional respite company or home care provider, it is a welcome gift.

An article in “Today’s Caregiver” states: “Nearly one in four caregivers of people with Alzheimer’s disease and other dementias provide 40 hours a week or more of care. Seventy-one percent sustain this commitment for more than a year, and 32 percent do so for five years or more. One of the best gifts you can give someone caring for Alzheimer’s is something that relieves the stress or provides a bit of respite for the caregiver.

The Gift of time: Cost-effective and truly meaningful gifts are self-made coupons for cleaning the house, preparing a meal, moving lawn/shoveling driveway, respite times that allow the caregiver time off to focus on what he/she needs.”

It is also important to note that hiring professional care provider services can provide valuable ongoing support to an overloaded caregiver. A financial planner can assist you to secure the funding to keep a loved one at home. An elder law attorney can help you iron out legal problems and assist with nursing home care financing issues. There are also cash benefits for Veterans, who served during a period of war, that pay for home care or assisted living.
If you are the one providing daily care for a loved one, you owe it to yourself to seek help.
Take care of yourself and your needs, both physically and mentally.  Seek out professional help that will ease your burden and look for community service organizations that offer respite help.

The National Care Planning Council’s website www.longtermcarelink.net contains tips and advice for caregivers and their families. Take a few minutes to find the help you need and enjoy this holiday season.

By: Matthew M. Wallace, CPA, JD

Published edited December 18, 2011 in The Times Herald newspaper, Port Huron, Michigan as: Taking care of the caregivers Sometimes outside help is only solution

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